Monday, July 27, 2009

Caught up in the Craziness

There have been so many things going on, I kind of have just let myself get caught up in the craziness. It's been exciting times for the foundation. Molly's Fund is having it's first event in September called "Serving up Style" and it's a group of designers coming together to raise money for lupus. They're coming together into six design teams and each team is going to create a dining experience. These displays will be featured at the Home and Garden Expo the second weekend in September.

There has been so many things to do to get ready for the show. We are putting together marketing materials, creating educational displays and a ton of other things. The awesomest (is that a word?) thing about our board is that everyone jumps right in and does their part. Each member of our board has their own specialty and is always willing to pitch in when the time comes. While I could sit here and complain about how crazy my life is and how exhausted I am, to be honest...I love it!

The weather is finally warm here in Oregon, I'm coming out of a flare and am feeling good (knock on wood). It's such a pleasure to be pitching in and doing my share of the work. I think that may be one of the worst parts of feeling sick, having to sit on the sidelines when you know that you could be helping if you were well. Feeling useful is the best medicine as far as I'm concerned.

That's not to say that I don't have my limitations. There have been a few days where by the end of the day I'm coughing a little and spiking a fever. It just means I have to rest a little bit more the next day and keep track of my energy. I've never been all that great at pacing, but I'm getting a little better at it each day. I can schedule two appointments top, three if I've been resting the day before. Even with all of that effort, there are always things on my to do list I can't get to.

I should know better than to even make to-do list's by now, but with the fog head the medications give me, I don't really have a choice. It used to drive me crazy not being able to check everything off my list at the end of the day, but at this point it just seems like such a waste of energy to worry about the little things like that. It sounds cliche, but it's still true. I'm off to get back to my to-do list for the day, but I wish you all pain free days and hope you're enjoying the summer sun.


"In times of great stress or adversity, it's always best to keep busy, to plow your anger and your energy into something positive."
~Lee Iacocca

4 comments:

brooke said...

During these crazy times, your perseverance and energy have been truly impressive. You rock!

Storm said...

I have been following your blog for some time now...what a great blog and very inspirational...thanx!

Storm said...

Hi,

Thank you for such a inspirational blog! I have been following your blog for sometime now and really can identify with you.

All the best!

LFA said...

Can you pass this along via your blog, and to all your contacts?

Lupus Foundation of America Needs Your Help -- Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act

Go to http://capwiz.com/lfa/home/

Click on the link "Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act," enter your zip code in the box called “Call Now” and click on the “go” button. You’ll then be presented with the contact information for your senators, as well as get talking points for what to say when you call.

Please ask your family, friends and coworkers to call on your behalf as well.