Wednesday, March 31, 2010

Seasons Greetings

It never fails the way that spring comes along with beautiful flowers blooming, the sun shining, and me laying in bed in pain. There are numerous studies out there that say that autoimmune disorders tend to flare at the change of seasons, but no one can ever tell you why.

I'd love to be positive and cheery, but the truth is that I got so exhausted trying to get ready this morning that I wound up taking a two hour nap and missing the appointment I was getting ready for. When you are dealing with pain like that it is hard to search for the answers to why you're hurting even though you desperately want them.

I trust my doctors and my advisers to tell me what is best for me, but sometimes it's just a matter of me figuring out for myself what is causing all the pain and fatigue. I'd love to tell you that I've had a great epiphany and discovered the reason, but the only thing I've been told is that it is the change of season.

We had our first day of spring last week, while here in Oregon that just meant more rain, in other places it means a big drop in barometer pressure and temperatures rising and the sun coming out more often. We're all aware that barometer changes can affect autoimmune disorders, but it still doesn't make it any easier now does it?

I have spent the last week in bed fighting fatigue and fevers with no explanation. My joints are swollen and aching so that every movement makes me want to cry in pain. The best explanation they have is that it's because the seasons are changing? Not good enough. Not good enough for me or all the other people out there like me who need better answers. Maybe someday we will get enough funding for research that we can actually discover things like what causes Lupus and how we can treat it, but until that day, I am going to continue to fight back and raise as much money and awareness as I can so someday I don't have to lay here and wonder why I am in so much pain.

I truly hope that your seasons change was better than mine and that this posting will find you in good health and you are pain free. Hang in there, we'll figure it out someday!!

"We must remember that one determined person can make a significant difference, and that a small group of determined people can change the course of history."
~Sonia Johnson